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Update March 2020

Julia passed on March 15, 2020, at 3 years old.  She bravely fought against a very rare form of childhood cancer (clival chordoma) for 1.5 years.  She spent the duration of her diagnosis receiving wonderful care at the Children's Hospital of Philadelphia (CHOP).

This website was created as a way to inform friends and family about her progress, as information was coming so quickly, but it quickly became a way to share her story when it went viral in January 2019.  The rapid growth of the tumor on her brain stem had put her into coma and she was given days to live.  I (her mother) posted a desperate plea here and on Facebook asking for prayers... 

Then we witnessed a miracle.

Over 2019, the world watched this little girl wake up from coma and beat every odd and obstacle in her path.  For 6 wonderful months we watched Julia blossom and we thought she'd beat this awful disease.  Her entire story, from before we even knew it was cancer, is here in my daily updates.  Scroll to the bottom, to October 30th 2018, to read from the beginning.

Julia's obituary is online here: dellafh.com/obituary/Julia-Adams

Thank you so much to everyone who followed along, and for all your generous donations, financial assistance, and thoughtful gifts.  Your support made this journey so much more bearable, and has allowed us to bring awareness to the reality of childhood cancer.  I have disabled many links on this site, as they mostly linked to events and fundraisers, which have all been discontinued.  So what remains is the blog with all Julia's beautiful photos and videos, her FAQ (not updated), the summary (not updated), and the t-shirts, which are still available for purchase <3 

Julia Adams' Story...

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December 28, 2019

Another very sleepy day. Minimal awake time, though we think at one point she did try to move her mouth to say dada. But she's just...

December 27, 2019

No new excitement today. Short update since I'm down here with Charlene and we need to head out soon. They had a really good visit. ...

December 26, 2019

No new concerns today, so I guess that's an OK day. Vitals are all really good. Heart rate has surprisingly been in the 120s which is...

December 25, 2019

Christmas update. Julia's doing pretty good vital wise, heart rate 120s/130s, respiratory rate 30s, oxygen saturation mid-90s on just...

December 24, 2019

Christmas Eve update. Julia's had an OK day. Very sleepy. Her vitals are looking better today though, heart rate in 130s, and...

December 23, 2019

Julia's had an OK day today, but she had a rough night last night. When I got to the hospital, she just wasn't in good shape. Her heart...

December 22, 2019

No major changes today. Vitals are all decent, ET is better than it has been (30s), but oxygen saturation has been on the low side today....

December 21, 2019

Super late update tonight. Gabriel was over, with Aunt Charlene's family and Manny. Charlene was coming over to help clean... but that...

December 20, 2019

A new normal day. Lots of sleeping, minimal interaction. Vitals are decent. Heart rate 130s, oxygen saturation high 90s, ET continues...

December 19, 2019

Julia has had an OK day... I guess? Heart rate 130s, ET low 50s, oxygen saturation high 90s, BP 95/53. But I guess there's not a ton to...

December 18, 2019

Julia's been doing a lot of sleeping today, but she's been pretty comfortable. She needed some Tylenol/Morphine early on, but then...

December 17, 2019

Julia's been comfortable today, and actually seemed to be in a pretty silly mood! All vitals are fine, for her. Not great for a typical...

December 16, 2019

It's hard to know how to start these posts, with regard to how her day went. It was 'fine' as in, no medical emergencies and no visible...

December 15, 2019

Not much to report today. Julia didn't nap yesterday and didn't sleep last night. She didn't seem like she was in pain, but she did...

December 14, 2019

Another late update. Megan, Manny, and Alicia braved my cold to keep me company. We played some board games and had a thing of hand...

December 13, 2019

Julia's had a pretty good day =) Her vitals are all decent. Breathing support is back down to minimal on the vent (she hasn't been off...

December 12, 2019

Super late update. I'm updating from Aunt Charlene's house... can't leave yet because Gabriel is still awake and he'd be really upset....

December 11, 2019

Julia's procedure this morning went well. They got the more permanent drain in. So far it's drained 700ml of fluid and counting. Since...

December 10, 2019

Welp, Gabriel was contagious. While visiting Julia last night, I swore my throat was starting to get sore. But I thought there's no way...

December 9, 2019

It has been... a day. Aunt Charlene called this morning because Gabriel was just miserable. He was up all night coughing so much he...

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