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Update March 2020

Julia passed on March 15, 2020, at 3 years old.  She bravely fought against a very rare form of childhood cancer (clival chordoma) for 1.5 years.  She spent the duration of her diagnosis receiving wonderful care at the Children's Hospital of Philadelphia (CHOP).

This website was created as a way to inform friends and family about her progress, as information was coming so quickly, but it quickly became a way to share her story when it went viral in January 2019.  The rapid growth of the tumor on her brain stem had put her into coma and she was given days to live.  I (her mother) posted a desperate plea here and on Facebook asking for prayers... 

Then we witnessed a miracle.

Over 2019, the world watched this little girl wake up from coma and beat every odd and obstacle in her path.  For 6 wonderful months we watched Julia blossom and we thought she'd beat this awful disease.  Her entire story, from before we even knew it was cancer, is here in my daily updates.  Scroll to the bottom, to October 30th 2018, to read from the beginning.

Julia's obituary is online here: dellafh.com/obituary/Julia-Adams

Thank you so much to everyone who followed along, and for all your generous donations, financial assistance, and thoughtful gifts.  Your support made this journey so much more bearable, and has allowed us to bring awareness to the reality of childhood cancer.  I have disabled many links on this site, as they mostly linked to events and fundraisers, which have all been discontinued.  So what remains is the blog with all Julia's beautiful photos and videos, her FAQ (not updated), the summary (not updated), and the t-shirts, which are still available for purchase <3 

Julia Adams' Story...

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February 7, 2020

Short update and a little early. My schedule is all mixed up today and I'm going to be driving at my normal update time. Julia's had a...

February 6, 2020

Ups and downs today. Vitals are stable, with recent BP 106/60 (which is perfect). She had a slight fever last night of 100.4 (38). ...

February 5, 2020

Another stable day. Heart rate is a bit higher (160s), but BP has been great all day at ~90s/50s, and all other vitals are unchanged. ...

February 4, 2020

No emergencies today. Vitals are all pretty good: heart rate 140s, BP 90s/50s, ET 40s. They continue to drain at the higher rate and so...

February 3, 2020

Still hanging in there. Vitals are holding steady. Blood pressure is where it's been all day: 80s/50s. That's really the only vital...

February 2, 2020

Not an awful day medically. I personally think she looks pretty bad around the stomach. Just swollen and red like usual, with the dark...

February 1, 2020

Edit - Updated Original: Not actually a Julia update yet. Gabriel is visiting and he hurt his finger by sticking it somewhere it didn’t...

January 31, 2020

Mostly stable day. No emergencies. We're definitely not in a great place, but she's holding steady. I'm posting early because Reed...

January 30, 2020

The day before the end of the month. 15 months in the hospital. You get to a point where you don't even want to think whole thoughts. ...

January 29, 2020

No fever since last night. They immediately put her on three broad spectrum antibiotics just because she's so fragile. So far nothing...

January 28, 2020

An OK day. Vitals are all decent, but a little up and down. BP was looking really great at 100s/60s most of the day, but now it's back...

January 27, 2020

Charlene was not a happy camper with me this morning. My post last night definitely could have come across as suggesting she sent me a...

January 26, 2020

Another emergency-free day. Vitals are stable, with BP 80s/40s all day. Still no fevers, so we're a week+ fever-free. She yawned...

January 25, 2020

No emergencies today! Vitals, including blood pressure, have all been stable. Blood pressure has been 80s/50s most of the day, with no...

January 24, 2020

Another exciting morning. Her blood pressure read 30/11 again. This time it was during shift change, so with the extra staff, they fit...

January 23, 2020

Another roller coaster of a day. She was doing pretty great until her blood pressure was checked and found to be 33/11. So that was fun....

January 22, 2020

Another quiet day. Vitals are all fine, but BP continues to be a bit low. It's been 70s/40s all day, now it's 66/48. No fevers in...

January 21, 2020

Julia's had a pretty good day. No new concerns (yay). Vitals are fine. BP is sitting on the low side, but still OK (80s/40s). No temp...

January 20, 2020

Final day for this round of chemo. Julia's had an OK day. ~~~~ I just wanted to clarify what I wrote yesterday, as some of the...

January 19, 2020

Day 4 of 5 for new chemo. She's had another OK day. The biggest concern is her belly is getting bigger again, with a new red area. I...

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