January 18, 2020
Day 3 of 5 for new chemo. They would hope to see at least stability in 6-8 weeks, if the medicine works. But I don't know if it's...
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Julia Adams
Warrior Princess Angel
All Photos of Julia and her family posted on this site are copyrighted. You can not use them without permission. Any illegal use will be promptly reported for copyright infringement.
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Update March 2020
Julia passed on March 15, 2020, at 3 years old. She bravely fought against a very rare form of childhood cancer (clival chordoma) for 1.5 years. She spent the duration of her diagnosis receiving wonderful care at the Children's Hospital of Philadelphia (CHOP).
This website was created as a way to inform friends and family about her progress, as information was coming so quickly, but it quickly became a way to share her story when it went viral in January 2019. The rapid growth of the tumor on her brain stem had put her into coma and she was given days to live. I (her mother) posted a desperate plea here and on Facebook asking for prayers...
Then we witnessed a miracle.
Over 2019, the world watched this little girl wake up from coma and beat every odd and obstacle in her path. For 6 wonderful months we watched Julia blossom and we thought she'd beat this awful disease. Her entire story, from before we even knew it was cancer, is here in my daily updates. Scroll to the bottom, to October 30th 2018, to read from the beginning.
Julia's obituary is online here: dellafh.com/obituary/Julia-Adams
Thank you so much to everyone who followed along, and for all your generous donations, financial assistance, and thoughtful gifts. Your support made this journey so much more bearable, and has allowed us to bring awareness to the reality of childhood cancer. I have disabled many links on this site, as they mostly linked to events and fundraisers, which have all been discontinued. So what remains is the blog with all Julia's beautiful photos and videos, her FAQ (not updated), the summary (not updated), and the t-shirts, which are still available for purchase <3
Julia Adams' Story...
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January 17, 2020
Julia's had a pretty fine day. Her vitals did their new-normal wonky thing again, where her heart rate goes up and her blood pressure...
January 16, 2020
No excitement today, thankfully. Vitals are decent: heart rate 140s all day / 160s now. BP hanging around 90/50, now it's 82/46. It's...
January 15, 2020
Julia continues to be a popular girl. Right now her vitals are decent: heart rate 140s, ET 40s, BP 92/54. She's getting some vent...
January 14, 2020
Julia's nice and comfy now. Last night she had the interest of the attending physician for a while, but today she's been pretty good. ...
January 13, 2020
Internet isn’t working at CHOP, so small update from my phone. Julia is having an OK day. Vitals are all pretty decent. Heart rate...
January 12, 2020
Julia has had a pretty good day! First of all, check out the comparison picture. I took this 'before' picture on Friday, mostly just to...
January 11, 2020
Julia is stable and comfortable. I'm updating a bit early tonight since I know people are waiting. Last night I was doing a few extra...
January 10, 2020
Things are not good. I asked the doctor if she could pass within 24 hours, and “unless something changes”, yes. Reed, Charlene and I are...
January 9, 2020
Today has been pretty decent for Julia. Vitals have all been really great: heart rate 120s, respiratory rate 20s/30s, oxygen saturation...
January 8, 2020
Julia is doing 'fine'. No new emergencies, vitals are unchanged, and she seems comfortable. We even saw her eye open 4-5 times today,...
January 7, 2020
Things are about the same as yesterday. Vitals are all decent. Morphine has been going around the clock "just in case", though the...
January 6, 2020
Well, we know that overall Julia is not doing super amazing right now, but today is a day to celebrate. Exactly one year ago we were...
January 5, 2020
Does your pre-wedding anniversary count after you're married? If so, it's our pre-wedding anniversary today. I guess it makes 13 years....
January 4, 2020
I lost track of time tonight, I hit stop instead of snooze on my update alarm and then forgot. So super short update. Julia has had a...
January 3, 2020
Not a bad day, considering. Her breathing continued to be labored throughout the night. After some new imaging today, they determined a...
January 2, 2020
(Picture didn't upload to Wix, so I just picked a generic one. I will try to fix when I get home) Lots of medical stuff in tonight's...
January 1, 2020
(Sorry, just noticed this was sitting in drafts!) New Year's Day. Longest post yet! Julia has been sleeping, as expected, but even a...
December 30, 2019
I haven’t mentioned the milestones recently, but it's the day before the end of the month, which means we've been in the hospital for 14...
December 29, 2019
Julia has slept the vast majority of the day. Well, I guess we're back to not actually being sure of what she's doing. Is this...
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