September 29, 2019
A fine day for Julia. The infectious disease team found the particular fungus Julia is fighting is more sensitive to a different medicine, so they are switching her. They still have not seen a positive since the 25th, though they will keep her on this new medication for 2 weeks to make sure there is no chance of it coming back. But apparently they talked to Reed about this blood infection. They said it usually makes children very sick, and is often a really bad situation... especially with no immune system. For her only be affected for one day, and to not see it grow or persist since then, has been "unexpected and astonishing". They said at this point they have no concerns and believe she's in no danger from it. Part of me is aware of the odds Julia continues to beat... but I think the larger part is not. I struggling majorly with the "why", so I don't often think about it. I keep waiting for the bad. The odds of... beating the odds forever has to be slim. Right? It makes me very uncomfortable to keep hearing the words "miraculous" and "astonishing" when it comes to her progress. I'm very HAPPY we keep hearing those words, but I just don't know why. ~~~~ They also started putting an ointment around her g-tube (that I thought was looking more red than normal), and it's already starting to clear up The nurses have also commented on how healthy her neck is. With the constant stream of mucus, and overly moist environment, they would expect her skin under her strings to be really raw and irritated. But it just continues to look nice and healthy. And as far as continued physical improvement from her stroke damage, she scratched her right arm with her LEFT hand for the first time <3 <3 More purposeful movement!! I can't wait for her to get into rehab. ~~~~ I didn't get a new video tonight. Pictures are from exactly a year ago... they're super adorable... but also kind of terrifying. This is what 'aggressive, deadly childhood cancer' looks like just one month before diagnosis. .
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********** ~~ Julia Adams ~~ *********** ************* Official Links ************** **************************************
Julia's official pages:
Website: juliaadamscancerfund.org
Facebook: Julia's Fight Against Rare Cancer - Fund
GoFundMe: gofundme.com/juliasfightagainstcancer
Julia's official fundraisers: T-shirts: https://bit.ly/2MQc0lF | https://tinyurl.com/y55lh988 Children's Book: https://amzn.to/2CTTN2S Jewelry: https://etsy.me/2E1mR8i Tumbler: https://tinyurl.com/yy6oamph Car Magnet: https://tinyurl.com/y4nxr3lr
Where I buy Julia's CBD Oil (CBD BioCare 3500mg bottle): www.naturallywellforlife.com || Coupon code: danaboyd
Chordoma Foundation: www.chordoma.org
If you're new and want to know what's going on, my first post about Julia was on October 31st. You can find them all on my Facebook page or Julia's website <3
