September 21, 2019
<3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 JULIA'S FINAL ROUND OF CHEMO IS DONE!!!
<3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 ... almost definitely. To clarify that: With the (limited) research available for this chemo/cancer combination, Julia's original plan was 12 rounds. She just finished that today. Her tumor has been 100% stable since spring - there has been absolutely no change on MRIs. Depending on her next MRI, which is scheduled for ~3 weeks from now: If the tumor shrinks:
They would consider a 13th and 14th round of chemo. Given the stability of the tumor since spring, I don't believe anyone expects sudden-shrinkage. But if it DOES shrink, that suggests the chemo is still finding "actively dividing cells" and killing them. So we'd consider continuing. If the tumor grows:
don't even like to think about this option. This would mean the chemo (plus her alternative treatments) are no longer working. We'd stop chemo immediately, as there is no point in further poisoning her for no reason, and we'd discuss other options. Medical options at this point would be some form of radiation, possibly surgery, possibly a different chemo. I very hesitantly say no one expects it to show growth. If the tumor is stable:
This is the expected outcome. This might suggest the tumor is dead; that the cells are no longer actively dividing, therefor chemo is no longer effective (in a good way - as there is nothing growing for it to destroy). There are further tests that can help confirm this. If this happens, chemo will stop as planned. Julia will recover at CHOP, and then enter an acute rehab facility for (likely) 1-3 months to work on rehabilitation. She would get a followup MRI in 3 months. Outside of "magical-vanishing tumor", this is what we want. ~~~~ But, we are entering an absolutely terrifying time. If things go as planned... Julia's medical treatment stops. And then we wait. Going to your first post-treatment checkup and seeing the cancer has started to spread again is 100% a real possibility. It happens. I talk to parents every month who live this reality. We are going to continue her alternatives at full force. Her nutritionist, who specializes in during- and post-chemo nutrition, is going to set us up with everything we need to turn her immune system into a work horse. And we're going to take every reasonable precaution to keep germs away so her body has nothing else to do but heal. But she is not out of the woods yet. Her chemo is likely done, as of today (yay!), but we have no idea what things will look like in 3 months. . Our angel family from New Zealand gives me so much hope - the family who reached out in January, after you all helped Julia's story (and awful days-to-live condition) go viral, and gave me their son's MRIs and his exact chemo protocol - proof that chemo can put this cancer into a state of NED (No Evidence of Disease). I have also received countless personal testimonies of people managing / curing their own cancer with her alternative treatments. Not the same news story being shared, or someone's "aunt's cousin's friend's boss"; but people I can talk to right here on Facebook, who are likely reading this update, who've had major success after doctors told them there were no options. While I have not met someone who has used them with Julia's cancer, the sheer amount of stories give me hope. ~~~~ Our biggest hurdle in the immediate future is keeping her SAFE from germs as her immune system tanks one final time. Back-to-school germs are hitting everyone I know... and the hospital staff isn't immune: her doctors, nurses, therapists, maintenance guys, re-stock clerks.... everyone can be exposed to these germs. The precautions at CHOP are fantastic... but we need her to get through one more time. . So, while we wait to see what Julia's future holds, let's celebrate that this little warrior plowed through 12 rounds of intense, 80%-chance-of-severe-complication chemo, with a smile on her face!! She chucked a few toys on her grouchy days, and she's wagged that no-finger enough for a life-time... but in January she couldn't even blink her eyes, and now, despite feeling absolutely miserable, she smiles and laughs every day. <3 <3 <3 .
. ********** ~~ Julia Adams ~~ *********** ************* Official Links ************* **************************************
Julia's official pages: Website: juliaadamscancerfund.org Facebook: Julia's Fight Against Rare Cancer - Fund GoFundMe: gofundme.com/juliasfightagainstcancer
Julia's official fundraisers:
T-shirts: https://bit.ly/2MQc0lF | https://tinyurl.com/y55lh988
Children's Book: https://amzn.to/2CTTN2S
Car Magnet: https://tinyurl.com/y4nxr3lr
Where I buy Julia's CBD Oil (CBD BioCare 3500mg bottle): www.naturallywellforlife.com || Coupon code: danaboyd
Chordoma Foundation: www.chordoma.org
If you're new and want to know what's going on, my first post about Julia was on October 31st. You can find them all on my Facebook page or Julia's website <3