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October 26, 2019

Not a great day for Julia, but her exhaustion and grumpiness is understandable. Medically she's been OK. Vitals are all just fine. She's thrown up a few times - just so much mucus. They've done several cuff-down trials and she did great. They did one this morning for about an hour, and another this afternoon for over an hour, maybe two, and she napped with no problem. She's been sooooo tired. Reed got back around noon, and she's pretty much slept on and off since he's been there. They said she slept on and off last night, but nothing super restful. Yesterday she had all three of her therapies, and the day before she did all that sitting up practice with Reed. So two days in a row of intense physical workouts, and not great sleep... so no one blames her for being so tired. And she probably has that 2nd-day muscle soreness in her little ab muscles =( They're doing their best to stick roughly to her schedule, but clearly she needs some extra rest today. She's been doing a LOT of wiggling, and it's frustrating her. We think it's because she knows she can sit up now, but doesn't understand her limitations. So she's wiggling and practically spinning in bed, and trying to sit up on her own but not succeeding. So... frustrating. But still good PT. ~~~~ I took Gabriel to the Renaissance Faire for their closing weekend. He had a great time =) We tried to FaceTime Julia, hoping for success like we had at the last event, but she was just way too tired. She waved at some pumpkins and watched Gabriel play in a bucket of water before falling back asleep. Not quite what I had hoped for, but still got a few smiles. No video tonight. Assuming she's in an OK mood, the plan tomorrow is a brother-sister play date and stroller ride. I will definitely get some video <3 . . .

********** ~~ Julia Adams ~~ *********** ************* Official Links ************* **************************************

Julia's official pages:

Website: juliaadamscancerfund.org

Facebook: Julia's Fight Against Rare Cancer - Fund

GoFundMe: gofundme.com/juliasfightagainstcancer


Julia's official fundraisers: T-shirts: https://bit.ly/2MQc0lF | https://tinyurl.com/y55lh988 Children's Book: https://amzn.to/2CTTN2S Jewelry: https://etsy.me/2E1mR8i Tumbler: https://tinyurl.com/yy6oamph Car Magnet: https://tinyurl.com/y4nxr3lr


Where I buy Julia's CBD Oil (CBD BioCare 3500mg bottle): www.naturallywellforlife.com || Coupon code: danaboyd


Chordoma Foundation: www.chordoma.org

If you're new and want to know what's going on, my first post about Julia was on October 31st. You can find them all on my Facebook page or Julia's website <3




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© 2020 - all photos in blog copyright Amy Largent. Please do not use them without permission. Thank you. 

Meet Julia Adams
I'm 3 years old and I have a rare and serious form of childhood bone cancer. I'm doing my best to beat it, but my family needs your help!