Julia has aggressive cancer. She has an ATRT tumor with a high mortality rate. Chance of survival, with aggressive treatment, is less than 30%. No chance of survival without treatment. More testing is being done to determine if there is a germ line involved which gave her (and our other kids) a genetic predisposition to cancer.
Neurosurgery is making a final call today on if surgery is even an option due to its location. Surgery is the first ideal step. Followed by 6 months of intense chemotherapy. And then targeted radiation. She will be given a central line (port) and they will watch/treat all typical chemo issues: infection, nausea, nutrition, etc.
Pretty much the worst diagnosis there is.