top of page

June 19, 2019

No MRI results, but none were expected.  (The good news is - nothing crazy is going on, like a brain bleed, or we would have heard.)  Lots of teams are interested in this MRI, and they'll all review it, and then talk to each other, and then talk to us.  So possibly tomorrow, but could be Friday.  I'm ping-ponging back and forth between anxious and hopeful.  I mean... it can't possibly be growing with all her improvement, right?

So she got general anesthesia and was down there for about 2.5 hours.  She was showing off for the anesthesia crew by high-fiving, waving, blowing kisses, and giving out smiles.  Everyone loved her <3 And then she was knocked out in about 1 whole second.  So she kept Reed up until 5am, and then slept up until her MRI appointment, woke up all happy for 30 minutes, then was knocked out and slept up until her bath at 10pm!  

The play date didn't happen today, but the plan is for next Wednesday afternoon.  They officially have her and Gabriel on the schedule!  I am SO excited to get them in a playroom together!!  Honestly, she's just going to love being sat at toddler-height and watch him run around tornadoing the place.  If we can get him to sit and color with her that will be a real treat =) (I mean... if we can get him to sit at the table and do anything other than eat the markers, that would be amazing.)

And I just want to mention - keep tagging me on other cancer kid stories / messaging me about your friends and loved ones.  I talk to people who are medically out of options every week, and many who aren't quite that advanced, and I'm at least able to offer some options and hope.  And since I haven't mentioned it in a while - we continue to go full strength on her alternative therapies: CBD / RSO / PEMF.  We have no doubt that the chemo is also helping, we just don't know how much (is it doing 100% of the work?  50%?  10%?)  I do keep in the back of my mind that this chemo is considered *so ineffective* that they literally left her to die rather than even try it.  And her followers since January know that's not an exaggeration.  But I've also met a (single) family where chemo alone handled this cancer.  So... who knows.  Anyway, please feel free to continue to message and tag me - I'm more than happy to share what I know.

Video in comments of Julia's visit with Gabriel the other day, followed by a clip from last Father's Day <3 Julia had fallen asleep while eating and was still feeding herself so we started filming.  You can hear my dad <3 

... Possibly MRI results tomorrow.  


. .

. ******** ~~ Julia Adams ~~  ********    ********** Official Links *********** (These are here because of scammers) ********************************

Julia's *only* pages:  Website: Facebook: Julia's Fight Against Rare Cancer - Fund GoFundMe:

Julia's *only* fundraisers:  T-shirts: | Children's Book: Jewelry:

Where I buy Julia's CBD Oil (CBD BioCare 3500mg bottle): || Coupon code: danaboyd

Chordoma Foundation:

If you're new and want to know what's going on, my first post about Julia was on October 31st. You can find them all on my Facebook page or Julia's website <3

200 views0 comments

Recent Posts

See All


bottom of page