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July 20, 2019

Day 5 of 5 for chemo.  Just completed round 9 - 3 more to go. She's about as expected.  Very tired, very cranky, super aggravated.  She always goes back on the steroid during chemo, so this is one of her worst days - final day of infusions + the anger from the steroid.  She's pretty much refused (or been unable) to nap all day.  No barfing at all though!  So that's great =) 

She's hitting her lowest point right now, and will stay here for about a week.  Right now it's mostly due to meds; in a few days it will be mostly due to low counts.  So just a crappy week coming up.  Hopefully she gets through it with no excitement.  

But, she's found times to be happy.  She played with her teacups and practiced stirring.  (That lasted about 5 minutes, then she just threw the spoons on the floor.)  She's obsessed with the pulse-ox monitor on her big toe.  If it's on her right foot, she can now reach down and unwrap it, with quite a bit of 'talking'.  She can't easily get it off her left foot, but at least it's a good core workout with the twisting.  And she's SUPER vocal when Peppa comes on!  I like to think she's trying to talk to her <3 

While driving around doing errands, I passed Freddy's and saw Julia's sign up <3 If you're local (PA: Downingtown / West Chester / Phoenixville) bring your family and friends to dinner Monday between 4:00-8:00!  Mention "Julia" and she gets a portion of sales =)

And talented Facebook follower Donna, performed the song she wrote for Julia tonight <3 "Mananas - Julia's Bananas".  Written by Donna Hartt in collaboration with Margaret Lassen and Tom Santoriello, with vocal assistance by Ginny Kowalski <3 

View performance on YouTube:

Video in comments: Short clip from 2 years ago in July - Julia and grandpa <3 and one from today.  You can see that her eyes are doing GREAT - they are in sync, and tracking, and they can both cross mid-line again.  The right eyelid is still kind of stuck open, but other than that, everyone's very happy with their crazy-good improvement since January!


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. ********** ~~ Julia Adams ~~  ***********    ************ Official Links ************** *************************************

Julia's official pages:  Website: Facebook: Julia's Fight Against Rare Cancer - Fund GoFundMe:

Julia's official fundraisers:  T-shirts: | Children's Book: Jewelry:

Where I buy Julia's CBD Oil (CBD BioCare 3500mg bottle): || Coupon code: danaboyd

Chordoma Foundation:

If you're new and want to know what's going on, my first post about Julia was on October 31st. You can find them all on my Facebook page or Julia's website <3

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