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July 20, 2019

Day 5 of 5 for chemo.  Just completed round 9 - 3 more to go. She's about as expected.  Very tired, very cranky, super aggravated.  She always goes back on the steroid during chemo, so this is one of her worst days - final day of infusions + the anger from the steroid.  She's pretty much refused (or been unable) to nap all day.  No barfing at all though!  So that's great =) 

She's hitting her lowest point right now, and will stay here for about a week.  Right now it's mostly due to meds; in a few days it will be mostly due to low counts.  So just a crappy week coming up.  Hopefully she gets through it with no excitement.  

But, she's found times to be happy.  She played with her teacups and practiced stirring.  (That lasted about 5 minutes, then she just threw the spoons on the floor.)  She's obsessed with the pulse-ox monitor on her big toe.  If it's on her right foot, she can now reach down and unwrap it, with quite a bit of 'talking'.  She can't easily get it off her left foot, but at least it's a good core workout with the twisting.  And she's SUPER vocal when Peppa comes on!  I like to think she's trying to talk to her <3 

While driving around doing errands, I passed Freddy's and saw Julia's sign up <3 If you're local (PA: Downingtown / West Chester / Phoenixville) bring your family and friends to dinner Monday between 4:00-8:00!  Mention "Julia" and she gets a portion of sales =)

And talented Facebook follower Donna, performed the song she wrote for Julia tonight <3 "Mananas - Julia's Bananas".  Written by Donna Hartt in collaboration with Margaret Lassen and Tom Santoriello, with vocal assistance by Ginny Kowalski <3 

View performance on YouTube: https://bit.ly/2GkyGIU

Video in comments: Short clip from 2 years ago in July - Julia and grandpa <3 and one from today.  You can see that her eyes are doing GREAT - they are in sync, and tracking, and they can both cross mid-line again.  The right eyelid is still kind of stuck open, but other than that, everyone's very happy with their crazy-good improvement since January!

YouTube: https://youtu.be/aTH7IW62I7Y

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. ********** ~~ Julia Adams ~~  ***********    ************ Official Links ************** *************************************

Julia's official pages:  Website: juliaadamscancerfund.org Facebook: Julia's Fight Against Rare Cancer - Fund GoFundMe: gofundme.com/juliasfightagainstcancer


Julia's official fundraisers:  T-shirts: https://bit.ly/2MQc0lF |  https://tinyurl.com/y55lh988 Children's Book: https://amzn.to/2CTTN2S Jewelry: https://etsy.me/2E1mR8i

Tumbler: https://tinyurl.com/yy6oamph

Car Magnet: https://tinyurl.com/y4nxr3lr


Where I buy Julia's CBD Oil (CBD BioCare 3500mg bottle): www.naturallywellforlife.com || Coupon code: danaboyd


Chordoma Foundation: www.chordoma.org

If you're new and want to know what's going on, my first post about Julia was on October 31st. You can find them all on my Facebook page or Julia's website <3




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© 2020 - all photos in blog copyright Amy Largent. Please do not use them without permission. Thank you. 

Meet Julia Adams
I'm 3 years old and I have a rare and serious form of childhood bone cancer. I'm doing my best to beat it, but my family needs your help!