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January 31, 2019

It's the last day of January, so Julia's been in the hospital for 3 months now.  Tonight is a short medical update, because we haven't been there to get much info.  Julia has had a stable day, nothing alarming with vitals.  She moved her mouth again when Reed gave her her medicine, so that "new" movement seems to be consistent which is really great.  AND the nurse said again today that her left pupil responded immediately to the flashlight!  So yesterday doesn't appear to have been a fluke =)  We've also noticed her left eye lid fluttering (?... can't think of a better word.  Twitching?  Vibrating?) once in a while.  The top part near the crease, not near the lashes.  I like to think she's trying to open it but she's just to tired and weak.  I have no proof of that, but that's what I'm deciding to think it is <3 

So right now, Julia's blood counts should be bottomed out from chemo.  They do labs regularly, and watch for the numbers to rise.  Once they hit some magic number, they do another round of chemo.  It's at this point they will do another MRI.  So we don't have an exact date, but at least we know when they're planning on doing it, in relation to other events.  This should be in roughly 2-3 weeks.

I think nearly a month ago, Reed said his left pinky was starting to tingle and that he thought maybe he had a pinched nerve in his shoulder, probably from sleeping on the hard hospital couch for so long.  Yesterday I was holding his hand and his two fingers were ice cold!  I said something, and he just casually said, "Yeah, and they're numb and weak now.  I can't really use them to grab anything anymore."  ...(I need a good facepalm picture here, but honestly I wouldn't expect anything different from Reed).  So he just let this pinched nerve get worse and worse, because leaving the hospital for even a few hours to get it taken care of didn't cross his mind!  

So I scheduled an appointment with our chiropractor and Reed reluctantly agreed to go out for the first time since November.  He needed a major adjustment!  Everything up around his spine/neck/shoulder was out of alignment.  (I'll take this time here to mention our chiropractor: Dr Raj @ Goshen Family Chiropractic - the only reason I'm able to walk normal again after my back injury! He's in West Chester and he's amazing.)

Since we were out toward home, we met our little guy for dinner.  It was so nice to see him and Reed hang out outside of the hospital =) Reed got lots of cuddles, and Gabriel showed off all his fancy new words.  We stopped at home to refill clothes and pickup some stuff, and Reed wanted to give our last remaining kitty (Ashes) some pets.  It took about 5 whole minutes, and now both Reed and the cat are sleeping on the laundry pile on the couch... he's just so tired all the time.  He's in his own home, after a big meal, and his arm is finally not hurting, so he's just knocked out.  So I'm giving him a little bit and doing the update now, before we drive back down to the hospital.  [For the record, we hadn't even pulled out of the parking lot at CHOP and he said, "I miss my goof goof." (that's Julia)] I didn't want to use an older picture, because we're all keeping such a close eye on her color and puffiness, so I wanted to keep it accurate.  Instead, I included two pictures of baby brother as well as a BEAUTIFUL piece of digital art by one of Julia's new Facebook friends =) 

**************************** ****** Official Links ****** ****************************

Julia's *only* website:  juliaadamscancerfund.org Julia's *only" Facebook page: facebook.com/JuliaAdamsCancerFund Julia's *only* GoFundMe:  gofundme.com/juliasfightagainstcancer

If you're new and want to know what's going on, my first post about Julia was on October 31st.. You can find them all on my Facebook page or Julia's website <3




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© 2020 - all photos in blog copyright Amy Largent. Please do not use them without permission. Thank you. 

Meet Julia Adams
I'm 3 years old and I have a rare and serious form of childhood bone cancer. I'm doing my best to beat it, but my family needs your help!