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January 30, 2019

I tried something different today and took a short video.  I like watching her breathe, and I wasn't sure if that was something other people would like as well!  It's a nice change from just a still picture.  The final shot is of her vitals monitor, which we stare at all day long.  Top green number is heart rate; then white is breaths per minute, then blue is oxygen saturation, then yellow (first number) is ET, and finally grey is blood pressure.  (YouTube link for website viewers:

They stepped back slightly on the sedation medication, and Morphine is staying at the lower level.  These are small steps, it's not like they're turning it off at once, so it could take a few days or more to see anything.  We did get a little bit of mouth movement out of Julia today (again!), she moved her jaw a bit, likely to get away from yucky-tasting medicine.  And (STILL TRYING NOT TO READ INTO IT), but her left pupil responded "completely normal" to the light check today!  Even the nurse confirmed that 3 days ago she had to shine the light in there 4-5 times just to get a small reaction.  She said today there was nothing out of the ordinary; it responded right away. Oncology said Julia's counts are down, so the chemo is affecting her bone marrow, and running its course on her body as expected.  Obviously no word on cancer status until an MRI (no date scheduled yet).

So it was a good day today!  Not too bad for a little girl who was supposed to be gone three weeks ago <3 

**************************** ****** Official Links ****** ****************************

Julia's *only* website: Julia's *only" Facebook page: Julia's *only* GoFundMe:

If you're new and want to know what's going on, my first post about Julia was on October 31st.. You can find them all on my Facebook page or Julia's website <3

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