Search

January 10, 2020

Updated: Jan 12

Things are not good. I asked the doctor if she could pass within 24 hours, and “unless something changes”, yes.


Reed, Charlene and I are with her.


She is opening her left eye quite a bit, but it’s not finding us. Her blood pressure got as low as 50/30. Her stomach has... somehow gotten “considerably larger” throughout the day. They have had to up vent pressure support to “dangerous levels” just to counteract the swelling. Even so, the co2/acid is building up in her blood (not sure if I got that part medically correct). She stopped producing urine; her kidneys are no longer working.


They are looking into more pain relief options (though she’s not visibly in pain), but they are warning us that morphine or fentanyl could drop her blood pressure even more. So I guess they’re consulting the anesthesiologist.


To CHOPs credit, they just ran every test and lab under the sun. No one here is giving up. They are in full infection garb and everything. We all know what’s going on, but... they are still at least looking for something they can fix.


I am updating from the bathroom because this is how my body handles stress. I hear them out there on FaceTime with cousins and brother.


So unless her kidneys start working and this pressure is relieved (and the cancer stops growing), she is likely nearing the end.

Laura Jean please update Wix.


.

.

.

*********** ~~ Julia Adams ~~ *********** ************* Official Links ************* **************************************

Julia's official pages:

Website: juliaadamscancerfund.org

Facebook: Julia's Fight Against Rare Cancer - Fund

GoFundMe: gofundme.com/juliasfightagainstcancer


Julia's official fundraisers:

T-shirts: https://bit.ly/2MQc0lF | https://bit.ly/35ppbSx

Jewelry: https://etsy.me/2E1mR8i

Car Magnet: https://tinyurl.com/y4nxr3lr


Where I buy Julia's CBD Oil (CBD BioCare 3500mg bottle): www.naturallywellforlife.com || Coupon code: danaboyd


Chordoma Foundation: www.chordoma.org

If you're new and want to know what's going on, my first post about Julia was on October 31st 2018. You can find them all on my Facebook page or Julia's website ❤






2,714 views8 comments
follow me
  • Facebook Social Icon

© 2020 - all photos in blog copyright Amy Largent. Please do not use them without permission. Thank you. 

Meet Julia Adams
I'm 3 years old and I have a rare and serious form of childhood bone cancer. I'm doing my best to beat it, but my family needs your help!