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January 10, 2020

Updated: Jan 11, 2020

Things are not good. I asked the doctor if she could pass within 24 hours, and “unless something changes”, yes.


Reed, Charlene and I are with her.


She is opening her left eye quite a bit, but it’s not finding us. Her blood pressure got as low as 50/30. Her stomach has... somehow gotten “considerably larger” throughout the day. They have had to up vent pressure support to “dangerous levels” just to counteract the swelling. Even so, the co2/acid is building up in her blood (not sure if I got that part medically correct). She stopped producing urine; her kidneys are no longer working.


They are looking into more pain relief options (though she’s not visibly in pain), but they are warning us that morphine or fentanyl could drop her blood pressure even more. So I guess they’re consulting the anesthesiologist.


To CHOPs credit, they just ran every test and lab under the sun. No one here is giving up. They are in full infection garb and everything. We all know what’s going on, but... they are still at least looking for something they can fix.


I am updating from the bathroom because this is how my body handles stress. I hear them out there on FaceTime with cousins and brother.


So unless her kidneys start working and this pressure is relieved (and the cancer stops growing), she is likely nearing the end.

Laura Jean please update Wix.


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*********** ~~ Julia Adams ~~ *********** ************* Official Links ************* **************************************

Julia's official pages:

Facebook: Julia's Fight Against Rare Cancer - Fund


Julia's official fundraisers:


Where I buy Julia's CBD Oil (CBD BioCare 3500mg bottle): www.naturallywellforlife.com || Coupon code: danaboyd


Chordoma Foundation: www.chordoma.org

If you're new and want to know what's going on, my first post about Julia was on October 31st 2018. You can find them all on my Facebook page or Julia's website ❤






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I honestly don’t know what to say. Love and hugs to you all.

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d9sschofield
d9sschofield
Jan 11, 2020

I have followed all of you for about 8 months every single day and at an old age have learned of strength, determination, love, courage, and beauty on levels I never knew existed. I plan to wear my Julia bracelet forever so I never forget what I now know. There really aren’t adequate words for ALL of you. May you feel peace.

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Julianne Boley
Julianne Boley
Jan 11, 2020

We are all with you and are wrapping you and your family in a virtual hug.

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Amy we are all here with you praying and supporting you from afar. Asking God to comfort all of you.

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Praying for a miracle, gods will, your family to have the strength to handle whatever is next...your family and your beautiful children have impacted a world beyond what you see. Julia’s journey has made me cry , smile, laugh... gave me hope. The love you have and openness to share your family with all of us is incredible. You have a gift and have shared that with all of us(both your family and your ability to write and allow us to be a small part of warrior Julia’s life). Bless you and love and prayers❤️

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