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February 4, 2019

Julia's having a good day today. Her vitals are nice and stable: heart rate 130s, saturation high 90s, ET low 60s, BP 116/75. She's still on the same amount of breathing assistance, but overall she's doing better today. 2-3 days ago she would struggle with oxygen saturation if anyone even touched her (like to change a diaper or turn her). Today there is no noticeable dip when she's moved. She has been having a mild fever off and on, but it's so far controlled with just cooling down the room and taking off her blanket.

I have not gone to any sort of chemotherapy/oncology orientation yet, so I'm not really sure what I'm talking about, but we're told her ANC rose from 700 yesterday to 9000 today. And her platelets were struggling a few days ago at 43k, a transfusion brought them up to 58k, and today they've continued to rise to 93k. I guess the target is 100k. They still expect a few more weeks of recovery, and of course we have no idea what this means in regard to the cancer, but it does look like her body is fighting back really well.

She gave Reed another firm chomp today, and her left eye is still responding perfectly fine to light. We've been at this 'improved' state for several days now... anxious to see a little something more.

I woke up with the smallest cough today, so I'm on high alert. I don't know a single person who is sick, but you never know where you pick stuff up at. So I'm staying away from the hospital for a day or two to see what happens.

Oh, and she's starting to lose her beautiful hair. It's coming out pretty clearly now when it's brushed =( It makes me very sad to see. I remember the day last summer when I was first able to pull it back into a big girl ponytail. It was for our neighborhood party. Actually I'm sure I have a picture; I'll add it to the post today. I think seeing it fall out is so hard because it's the first physical sign that she has cancer. I think I'm sometimes able to believe she doesn't... or something. I expect she'll lose it all over the next week or so, and then I'll no longer be able to pretend that she's just peacefully sleeping.





********** Official Links ***********

(These are here because of scammers)


Julia's *only* website:

Julia's *only" Facebook page:

Julia's *only* GoFundMe:

Julia's *only* official fundraisers:

Beef & Beer (Feb 23) -

T-shirts -

If you're new and want to know what's going on, my first post about Julia was on October 31st. You can find them all on my Facebook page or Julia's website <3

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