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February 27, 2020

I believe we are nearing the end.  She has declined quite a bit throughout the day.  They believe the fluid is starting to fill up her lungs.  Her blood pressure has been 40s/teens most of the day.  Heart rate over 200.  They've upped her pain medicine quite a bit so she's very comfortable, but super out of it.  

She's had her hand held all day long.  Lots of hugs and kisses, her favorite shows on.  Doctors, nurses, and therapists keep stopping by to tell her how much they love her.  They look at her beautiful sign on the door and smile at all her pictures.


Earlier today, family, friends, and the kids went to craft stores to pick out a charm that meant something to their special relationship with Julia.  We made her a charm bracelet with everyone's unique charms.  This will stay on her after she's gone.  And everyone bought a second matching charm, so only they have the duplicate.  Most of us will turn our charm into a necklace.  

Gabriel picked out a pair of dinosaurs - one has all white gems for Julia, the other has green and blue gems for himself.  I even picked out three extra special charms in case we have more kids... so they can each have a unique one to match their big sister.  We bought tiny treasure boxes to keep them in.  

It was very sweet.  Very emotional.  


I just can't believe the end is actually here.  I've prepared myself as much as I can... but I'm not ready to say goodbye.  She's too special to leave this Earth.  


No video tonight.

*** Please watch for an event link for the Blood Drive being held in Julia's honor this April. The location has changed, but the time and date are the same. My sister will get an event page up shortly, and I'll add the link here. We just appear to be rapidly running out of time on these daily Julia updates, so I wanted to get this info out while it was on my mind.




*********** ~~ Julia Adams ~~ ***********   

************* Official Links *************


Julia's official pages: 


Facebook: Julia's Fight Against Rare Cancer - Fund


Julia's official fundraisers: 

T-shirts: |


Car Magnet:

Where I buy Julia's CBD Oil (CBD BioCare 3500mg bottle): || Coupon code: danaboyd

Chordoma Foundation:

If you're new and want to know what's going on, my first post about Julia was on October 31st 2018. You can find them all on my Facebook page or Julia's website.  A current summary can be found here:

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sheli novak
sheli novak
Feb 28, 2020

The first 4 words in the Bible are In The Beginning God ...

In the beginning, on the day Julia was born God was there rejoicing with you. In the beginning of this cancer battle God was there strengthening you and Julia for this fight. In the beginning of her decline God was there preparing you and whispering to Julia beautiful things that our ears cannot hear. In the beginning of Julia’s entry in to Glory God will be there with snuggles and Peppa and joy until the moment you join her.

No matter what comes next ....miraculous unexplained healing or heaven I believe in Julia and hope and courage and wonder and love and beauty and eternity!


I can’t say anything more beautiful than the other posters. Just know you are all being held close in my heart. I’ve been kissing my Julia’s Army bracelet throughout the day all week. I believe Julia feels the love with each one - the love from all of us. God bless and keep you during this time.


Erin McGahuey
Erin McGahuey
Feb 28, 2020

Oh Amy... please know that I am praying for a miracle, knowing that the miracle has already happened in the thousands of people praying for Julia and all of you, in the new research on alternative therapies, and in the nearly 14 months past "days to live."

I am praying for a peaceful passing, for comfort for you, Reed, and Gabriel as you adjust to another "new normal," for acceptance that Julia's healing will likely be in Heaven. Much love, many long hugs, many tears.


My heart is breaking for you and all those who love Julia. We are not suppose to bury our children. Having said that, I feel joy at the cherished memories you have, for the extra time that you have had for more than year,(although there is never enough time). I will hold you in my prayers.


Oh sweet girl, you are almost home and you will be running with such joy and wonder in your soul. No more tears, discomfort or struggles. You are and will continue to be such an amazing blessing to me and my family. I will be celebrating you home sweetie pea. 💕💕

Amy, you always are so close to my heart and in my prayers. You are crazy strong...may God wrap his arms around all of you in the days and weeks and years yet to come. 💕

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