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February 12, 2019

Short update tonight.  I picked up Reed to take him to the chiropractor, and then we avoided rush hour back into Philly with the weather being so bad.  We're headed back shortly, so I wanted to get a quick update online so no one is waiting until midnight =) 

Julia had a very sleepy day today.  No concerns.  I don't have a current vitals image to go off of, but everything has been "fine" according to Reed.  The doctors had put all the orders through for chemo, but it hadn't started when we left in the late afternoon.  I expect it has started by now.  

The bolt hole wound on the side of her head looks... the same honestly.  Reed and the nurses say it looks better.  I don't see it.  I think it looks awful.  I wanted to get a picture of it but her headband was kind of hiding it and she was sleeping so comfortably, so I didn't want to bother her.  So I'll check again tomorrow.  I don't remember if I talked about this concern of mine in a post before, or if it was just in comments.  Once her hair fell out, for the first time I saw one of the halo bolt holes behind her left year.  It looked REALLY BAD, especially compared to her million other incision sites that look fantastic.  No one seemed concerned but me... they all agreed it was heavily scabbed over (but this isn't a scab on the surface... it's clearly like, cratered into her head).  Anyway.  They called in the wound care team to evaluate it and they're all happy with it.  So maybe I'm crazy.  I guess it doesn't look actively infected... it's not warm, overly pink around the edges, or like... oozing.  it's just so awful looking compared to the rest.  

I'm not sure how alert she's been today.  Though Reed did text in the middle of the night saying her eye was open TWICE AS BIG as we've seen it yet, but he couldn't get a picture in time.  Hopefully I can grab one tonight while I'm reading to her =) 

So that's all I have today - hopefully an update with some more good news tomorrow.

Oh, and since he finally made it into a picture - I wanted to introduce Penguin.  He is a well-loved guardian penguin, who has seen another family survive through brain surgery, three cancers, and epilepsy.  The young girl who now cares for Penguin couldn't think of a better patient for Penguin to watch over than Julia, so they sent him to her.  Hopefully Julia will be "Survivor Against All Odds #6" and we can send Penguin back home someday soon <3 

. . . ******************************** *********** Official Links ********** (These are here because of scammers) *********************************

Julia's *only* website: Julia's *only" Facebook page: Julia's *only* GoFundMe: Julia's *only* official fundraiser:  T-shirts -

If you're new and want to know what's going on, my first post about Julia was on October 31st. You can find them all on my Facebook page or Julia's website <3

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