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December 27, 2019

No new excitement today. Short update since I'm down here with Charlene and we need to head out soon. They had a really good visit. Charlene crawled into bed and took a nap. Julia was very content =) I talked to the resident doctor about the x-ray and ultrasound of her swollen abdomen. Their main concern (I think he said a CSF-oma?) was not present. Everything showed all the typical fluid that's there, just in larger quantities. No masses or anything. Lots of poop. So they gave her some more laxatives and it's helped, but if anything, it only reduced swelling a touch. I explained my concern with this being CSF (cerebrospinal fluid) that is no longer being absorbed, but is being deposited into her abdomen by her shunt (as intended). He agreed that's a possibility they are looking into. Tomorrow at rounds they will discuss what the next step is - might be a biopsy. She gave me a good smile when I made a funny face so I got out the camera. I got another smaller smile, and that video is in the comments. But in general, a nice lazy, comfortable day for her in general.


(I will add video when I'm home - it's on Facebook now) . . .

*********** ~~ Julia Adams ~~ *********** ************* Official Links ************** ***************************************

Julia's official pages:

Website: juliaadamscancerfund.org

Facebook: Julia's Fight Against Rare Cancer - Fund

GoFundMe: gofundme.com/juliasfightagainstcancer


Julia's official fundraisers: T-shirts: https://bit.ly/2MQc0lF | https://tinyurl.com/y55lh988 Jewelry: https://etsy.me/2E1mR8i Car Magnet: https://tinyurl.com/y4nxr3lr


Where I buy Julia's CBD Oil (CBD BioCare 3500mg bottle): www.naturallywellforlife.com || Coupon code: danaboyd

Chordoma Foundation: www.chordoma.org


If you're new and want to know what's going on, my first post about Julia was on October 31st 2018. You can find them all on my Facebook page or Julia's website <3




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© 2020 - all photos in blog copyright Amy Largent. Please do not use them without permission. Thank you. 

Meet Julia Adams
I'm 3 years old and I have a rare and serious form of childhood bone cancer. I'm doing my best to beat it, but my family needs your help!