top of page

August 31, 2019

It's the end of the month, so Julia has just completed her 10th month in the hospital.  She's slept in a hospital bed for 305 days in a row... which is just over 30% of her life.


In honor of Julia's 10 month battle, here are some facts as we go into Childhood Cancer Awareness Month tomorrow: 

- In the US, over 11,000 children are diagnosed with cancer every year.  That's 43 a day.

- 1 in 4 will not survive the disease.

- The average age of diagnosis is 6.

- The most common cancers for kids are leukemias, brain and CNS tumors, and lymphomas.

- After accidents, cancer is the leading cause of death in children.

- More than 40,000 kids are going through cancer treatment every year.

- This year, over 1,100 kids will die to cancer in the US.  That's more than 3 a day.

- 60% of kids who survive their cancer face serious health conditions in the future, including infertility, organ failure, and other cancers.

Many advances have been made in childhood cancer treatment, but some cancers still have a survival rate of nearly 0 and a life expectancy of just a few months.  Due to severe lack of national funding, some of these kids are still getting treated with 1980's medicine and techniques.  That's why your donations to these causes are so important. 


It's the final day for this round of chemo, and Julia is tired, cranky, and barfing.  So everything is as expected.  I'm glad it's the weekend and she had no therapies.  She's been awake for maybe 2 hours total. She wakes up for a little bit, grumps, gets some cuddles, barfs, then goes back to sleep.  They've given several doses of nausea meds which make her sleepy, so that combined with the chemo just keeps her knocked out.

But even with the complete exhaustion, she's been on her HME all day and has done really great, and she continues to be off her breathing rate at night - so that's 4 nights in a row and she's having no issues.  It's such a good sign that she can handle all this breathing on her own while going through chemo.  

So round 11 is officially finished.  We need to get through all her counts dropping with no complications, and then do it once more... She's almost done. 


Short video in comments of the last time she had her favorite food - a Peppermint Patty.  This was after recovering from the initial biopsy in the back of her throat, that's why she's swallowing funny.  Peppermint Patty's are Reed's favorite too.  It's the only junk food he'll eat. He's had a brand new pack with him at the hospital since November, but he won't open it until she can have one too.



. ********** ~~ Julia Adams ~~  ***********    ************* Official Links ************* *************************************

Julia's official pages:  Website: Facebook: Julia's Fight Against Rare Cancer - Fund GoFundMe:

Julia's official fundraisers:  T-shirts: | Children's Book: Jewelry:

Where I buy Julia's CBD Oil (CBD BioCare 3500mg bottle): || Coupon code: danaboyd

Chordoma Foundation:

If you're new and want to know what's going on, my first post about Julia was on October 31st. You can find them all on my Facebook page or Julia's website <3

322 views0 comments

Recent Posts

See All
bottom of page