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April 9, 2019

This little girl amazes me. Her counts are at zero - she's at the most miserable she'll be from chemo, and we have videos of her dancing and singing! ‍‍‍‍‍‍ ‍‍

Do you know childhood cancer research only gets 4% of national funding? Isn't that awful? No wonder we're lacking for cures. Just look at the fighting potential these little ones have... if we had a good way to attack this thing, all these kids would make it through! You can't ask for more resilience and spirit. If the opportunity presents itself to donate (like at the grocery store) just do it every time - even a $1 makes a difference when it comes from everyone. We need to give these kids a chance <3 ‍‍‍‍‍‍ ‍‍

OK! Back to Julia <3 So she had a good day today =) Her vitals are all great. She's barfed twice, but one was all mucus, and the other was during a trach change, so they think both were due to her gag reflex rather than nausea. ‍‍‍‍‍‍ ‍‍

Speech therapy was in while Reed was taking a nap. He didn't get to see the session, but they told him it went really well (unlike last time), and they are very happy with how she did. She was interested and engaged, and did a really good job with some touch-and-feel books and flash cards. They've been practicing with some communication boards sent in by her Facebook friends as well - basic stuff like yes/no to happy/sad faces and things like that to start. She's also added "Tiger" to the words she can say (does it count as being 'said' when she doesn't make any noise?) Either way, she mouthed "Tiger" for the first time =) ‍‍‍‍‍‍ ‍‍

So that's all today! For counts being at nothing... she's just had a really good day. The video here is of her happily singing along to a Peppa song (first time I've actually seen her sing along!), and I'll put a video in the comments of her dancing =) (She realizes she made "2" with her fingers and you can see her mouth "two!".) The bandage thing on her chest is her port - she's getting ready for her bath here <3 ‍‍‍‍‍‍ ‍‍

I'm so thankful she gets such joy out of this silly show.

YouTube x2!: and

. . . ******************************** ********* Official Links *********** (These are here because of scammers) ********************************

Julia's *only* fundraisers: T-shirts: Children's Book: Jewelry:

Where I buy Julia's CBD Oil (CBD BioCare 3500mg bottle): || Coupon code: danaboyd

If you're new and want to know what's going on, my first post about Julia was on October 31st. You can find them all on my Facebook page or Julia's website <3

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Sep 26, 2022

Thank you for sharing thiss

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