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April 20, 2019

Julia had a good day today <3 Vitals have been fine, only a few small spit-ups from snots. Lots and lots of snots. No therapy session on the weekends, so she just had a nice relaxing day with her daddy and cartoons. ‍‍‍‍‍‍ ‍‍

We took Gabriel on his first Easter egg hunt. It was really nice, but he was in the 2 year old group, and as soon as all the 2 year olds ran onto the field it was a little sad. I get by day to day, but sometimes it hits me how much of an injustice this all is. Julia is also a 2 year old... she should have been out picking up Easter eggs today, not fighting cancer in a hospital room. Reed should have been in the picture with Gabriel - his brother shouldn't have to stand in as dad for all these months (thank God he's here to do it though). I just couldn't help but look at all the parents and wonder... do you even know there is a little girl who should be here, but isn't? ‍‍‍‍‍‍ ‍‍

Ugh. Just such a crappy feeling. I want to be happy for my one kid, but it's difficult when your other is so sick and missing out. I know if she gets better, we have her whole life to make up for what she's missing now (and I know SHE doesn't even know what she's missing...) Holidays are just rough. ‍‍‍‍‍‍ ‍‍

So I spent the day with Gabriel today and didn't get to see Julia. I'll be with her all day tomorrow. We're going to try to do something clever with Easter eggs so she can play. She really liked finding the eggs last year... maybe I can hide them in some of the basket grass so she can pick them out or something. I don't know. I'll try to think of something tonight. Miss my girl. ‍‍‍‍‍‍ ‍‍

Reed sent two adorable videos today - I'll share both. One shows her doing SUCH a good job rolling up onto her side! She's not quite all the way up, but she's doing so good!! Anything to get to her iPad. She has a slight bolster with the blankets under her right shoulder, but she's doing most of the moving on her own =) And Reed says she's really kicking her feet trying to roll over. She'll have it soon! And then a cute video of her wiping her own nose ... well, trying her best <3 ‍‍‍‍‍‍ ‍‍

That's all today - short update! Charlene and I are running out to Walmart... Easter morning oversight for her kids. ‍‍‍‍‍‍ ‍‍

YouTube - Julia rolling to her side:

YouTube - Wiping her own nose: ‍‍‍‍‍‍ ‍‍ . . . ******************************** ********** Official Links *********** (These are here because of scammers) *********************************

Julia's *only* pages: Website: Facebook: Julia's Fight Against Rare Cancer - Fund GoFundMe:

Julia's *only* fundraisers: T-shirts: Children's Book: Jewelry:

Where I buy Julia's CBD Oil (CBD BioCare 3500mg bottle): || Coupon code: danaboyd

If you're new and want to know what's going on, my first post about Julia was on October 31st. You can find them all on my Facebook page or Julia's website <3

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