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April 18, 2019

We have her MRI results. There is no miraculous cancer-free status, but it’s all good news! ‍‍‍‍‍‍ ‍‍

The cancer hasn’t spread anywhere. Since the last MRI (March 5) they can see visible reduction in some areas. It’s not a lot, but it’s there. And in areas that there is not visible size reduction, the spots on the MRI are less intense (not lighting up as much), suggesting the cancer is dying there as well, even if the size is the same. ‍‍‍‍‍‍ ‍‍

Reed asked if there is ANY bad news, and the doctor said no, and they’re very encouraged with her physical progress. ‍‍‍‍‍‍ ‍‍

The whole team will be meeting to review the new images and discuss next steps. They usually schedule chemo for 3-4 months at a time, which she just completed. So they’ll figure out what the best course of action is. Same chemo, different chemo, additional chemo, lesser chemo, etc. ‍‍‍‍‍‍ ‍‍

So that’s that! I’d normally be more animated but I’m typing on my phone and it’s slow. (Reed and I are out at our first dinner together I think since we brought her in! She’s snoozin at the hospital, and I picked up Reed to get a haircut and go to the playground with Gabriel. On the way back we decided to have a celebration dinner :-) But... it’s 9:15 and I won’t get back to a computer until well after 11, and I know everyone is anxiously waiting! So I’m typing while waiting for our food <3 ) ‍‍‍‍‍‍ ‍‍

Quickly some other things. I requested copies of all MRIs. When I get them I’ll share all the important ones: initial diagnosis, post-surgery, terminal diagnosis, and current status. Will be a week or so I think. ‍‍‍‍‍‍ ‍‍

Julia had THREE therapies today! Speech, OT, and PT. She didn’t cooperate with speech. They referred to her as opinionated. That’s my girl. And OT/PT came in while Reed was down at lunch so he missed it! He came back to people cheering and Julia sitting on the EDGE of the bed! Supported of course, but they commented on her rapid progression and strength. She already required less support sitting up than last time. They are super happy. ‍‍‍‍‍‍ ‍‍

They are talking to respiratory about the speaking valve. She’s not a candidate for the one that caps the trach since she still gets mild vent support, but they said she may be a candidate for the in-line valve. They’re going to see if any specialists want to be involved (like ENT or speech) or if they can just try it themselves. ‍‍‍‍‍‍ ‍‍

So that’s it! ‍‍‍‍‍‍ ‍‍

Great news today! Shes going to have to fight for every inch, but shes definitely responding to something. Chemo or the alternative treatments we don’t know, but we’re continuing forward with hope!! ‍‍‍‍‍‍ ‍‍

. . . ********************************* *********** Official Links *********** (These are here because of scammers) *********************************

Julia's *only* pages: Website: Facebook: Julia's Fight Against Rare Cancer - Fund GoFundMe:

Julia's *only* fundraisers: T-shirts: Children's Book: Jewelry:

Where I buy Julia's CBD Oil (CBD BioCare 3500mg bottle): || Coupon code: danaboyd

If you're new and want to know what's going on, my first post about Julia was on October 31st. You can find them all on my Facebook page or Julia's website <3

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