A good day today, if a bit grumpy <3. Vitals are fine. One very small spit-up but no real vomiting, so it really seems like the GJ tube has helped get that under control. And it's really nice to see her chunkin' up! She was skin and bones in January, now she's getting some fat back on her legs and face <3
They have all her tubes and wires going off one side, and she seems to have healed up enough to not be super bothered by the bed wiggling and moving under her (for any of Julia's new followers (Hi!) she had a major spine fusion surgery in November, and she's still recovering from that). Anyway, we've been keeping her more to the side of the bed so one of us can lay next to her, and she's REALLY enjoying that. She keeps (unsuccessfully) trying to roll over and scooch toward us. She's getting a little frustrated, understandably, but ALL she wants to do is cuddle. She wants either mommy or daddy right next to her in bed while she watches Peppa <3
PT tried to stop by today but she was sleeping, so they'll be back tomorrow. More noise with the cuff down, but no words yet (she's certainly letting the nurses know she does not like her diaper changes!) She didn't make any noises for me to get a video, but I'll grab one when I can =) And I reminded Reed to ask about the speaking valve - I don't have any details other than I know it exists - it's something that makes it easier for her to talk with a trach. And I believe they're headed that direction; the cuff has now been down all day for 2 days and she's doing great! And as far as we know, MRI is still scheduled for sometime this week. Everyone is really happy with her progress.
So that's Julia. But I have something more on my mind tonight.
Anyone who has followed Julia for a while, knows I don't share anything on my page except her nightly updates. I get linked to SO MANY sick children, it's just heart breaking, but I can't possibly share all the stories. You're all here for Julia, and I try to keep the focus on her. But this was brought to my attention today and I'm so disgusted I'm actually sick to my stomach.
I was tagged on little Callie's page (a sweet little one fighting stage 4 cancer) 2 months ago, asking me to message the family with what we're doing for Julia. Of course I did, as I do for other families many times a week. Whenever I'm tagged, I take the time to send a personal message - I detail Julia's situation, where she was/where she is, what we're doing, how to get everything, and I act as a go-between with my contacts, and set them up with the first course of therapies if at all possible. I'll be honest, I hate getting tagged. It makes me sad. It stresses me out. It makes me doubt Julia's "miracle" because there are SO MANY sick kids. But... if Julia has any sort of winning-combo to fight this, then it's my obligation to share with these other families, regardless of any way it makes me feel.
Because the ONLY thing that matters, is the little kid fighting cancer.
Right?
Does anyone disagree with that?
Apparently some do.
I was just tagged on this new story today. Callie's family recently received a very hurtful message, saying someone WAS going to make a very generous donation to their child's fight, but because she has "two mommy's", little Callie was no longer considered worthy of financial assistance.
NO LONGER WORTHY. A toddler. Fighting cancer. Unworthy.
As far as I know, this family is using Julia's alternative treatments, and they are expensive. This person has the means to donate, and went through the effort to donate... up until they decided Callie isn't worth it, due to disagreeing with her parents actions. And then instead of retaining any sort of dignity and just walking away quietly, they felt the need to message the family blaming them for their child's cancer.
The words and actions of this person are repulsive. You know how you can smile so much your cheeks hurt? I've been scowling in disgust so long my jaw hurts. All day. I'm doing it again right now, and I can't wipe it off my face.
I don't even know what to do right now. I'm pissed.
Is Callie worthy of YOUR money? She is precious, just like Julia. She is deserving, just like Julia. She's a FIGHTER, just like Julia. On average, 8,000 people react to my nightly posts (that doesn't include all of you who don't react, or all the shares, or all the family members, or all those who read on Julia's page, or all those who read on her website, or all those who read on her GoFundMe). 8,000 people, that I can count, will see this post within a few hours. If 8,000 people donate just $2.50 to Callie's fight, not only would Julia's Army completely negate the hateful words of this scum, but we'd immediately reach their GoFundMe goal.
So if it's in your means to donate, donate in Julia's name with love in your heart for this sweet angel. Because CALLIE is what matters. And if it's not within reach right now, consider giving their page a follow. Show them love in numbers, just like you've shown Julia.
#NoOneFightsAlone
#calliestrong #tinybutmighty
Callie's page: https://www.facebook.com/calliestrong2019/ Callie's GoFundMe: https://www.gofundme.com/tinybutmighty17
I'm worked up right now, but I'll calm down. I'll get the sweetest video ever of her and her daddy in the comments in just a minute <3
YouTube: https://youtu.be/jsyqcFtYTz8
. . . ******************************** ********** Official Links *********** (These are here because of scammers) ********************************
Julia's *only* pages: Website: juliaadamscancerfund.org Facebook: Julia's Fight Against Rare Cancer - Fund GoFundMe: gofundme.com/juliasfightagainstcancer
Julia's *only* fundraisers: T-shirts: https://bit.ly/2MQc0lF Children's Book: https://amzn.to/2CTTN2S Jewelry: https://etsy.me/2E1mR8i
Where I buy Julia's CBD Oil (CBD BioCare 3500mg bottle): www.naturallywellforlife.com || Coupon code: danaboyd
If you're new and want to know what's going on, my first post about Julia was on October 31st. You can find them all on my Facebook page or Julia's website <3
