February 27, 2020
I believe we are nearing the end. She has declined quite a bit throughout the day. They believe the fluid is starting to fill up her...
Update March 2020
Julia passed on March 15, 2020, at 3 years old. She bravely fought against a very rare form of childhood cancer (clival chordoma) for 1.5 years. She spent the duration of her diagnosis receiving wonderful care at the Children's Hospital of Philadelphia (CHOP).
This website was created as a way to inform friends and family about her progress, as information was coming so quickly, but it quickly became a way to share her story when it went viral in January 2019. The rapid growth of the tumor on her brain stem had put her into coma and she was given days to live. I (her mother) posted a desperate plea here and on Facebook asking for prayers...
Then we witnessed a miracle.
Over 2019, the world watched this little girl wake up from coma and beat every odd and obstacle in her path. For 6 wonderful months we watched Julia blossom and we thought she'd beat this awful disease. Her entire story, from before we even knew it was cancer, is here in my daily updates. Scroll to the bottom, to October 30th 2018, to read from the beginning.
Julia's obituary is online here: dellafh.com/obituary/Julia-Adams
Thank you so much to everyone who followed along, and for all your generous donations, financial assistance, and thoughtful gifts. Your support made this journey so much more bearable, and has allowed us to bring awareness to the reality of childhood cancer. I have disabled many links on this site, as they mostly linked to events and fundraisers, which have all been discontinued. So what remains is the blog with all Julia's beautiful photos and videos, her FAQ (not updated), the summary (not updated), and the t-shirts, which are still available for purchase <3