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Update March 2020

Julia passed on March 15, 2020, at 3 years old.  She bravely fought against a very rare form of childhood cancer (clival chordoma) for 1.5 years.  She spent the duration of her diagnosis receiving wonderful care at the Children's Hospital of Philadelphia (CHOP).

This website was created as a way to inform friends and family about her progress, as information was coming so quickly, but it quickly became a way to share her story when it went viral in January 2019.  The rapid growth of the tumor on her brain stem had put her into coma and she was given days to live.  I (her mother) posted a desperate plea here and on Facebook asking for prayers... 

Then we witnessed a miracle.

Over 2019, the world watched this little girl wake up from coma and beat every odd and obstacle in her path.  For 6 wonderful months we watched Julia blossom and we thought she'd beat this awful disease.  Her entire story, from before we even knew it was cancer, is here in my daily updates.  Scroll to the bottom, to October 30th 2018, to read from the beginning.

Julia's obituary is online here: dellafh.com/obituary/Julia-Adams

Thank you so much to everyone who followed along, and for all your generous donations, financial assistance, and thoughtful gifts.  Your support made this journey so much more bearable, and has allowed us to bring awareness to the reality of childhood cancer.  I have disabled many links on this site, as they mostly linked to events and fundraisers, which have all been discontinued.  So what remains is the blog with all Julia's beautiful photos and videos, her FAQ (not updated), the summary (not updated), and the t-shirts, which are still available for purchase <3 

Julia Adams' Story...

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February 27, 2020

I believe we are nearing the end.  She has declined quite a bit throughout the day.  They believe the fluid is starting to fill up her...

February 26, 2020

Julia has had a comfortable day.  The drain got rid of quite a bit of fluid last night, at one time causing her blood pressure to drop to...

February 25, 2020

Late update.  Charlene rode with me to the hospital, and I just got back from dropping her off at home. News isn't any better.  It's not...

February 24, 2020

It looks like ultrasound with contrast results show the cancer has spread to her organs. They say the images didn't "enhance" like fungus...

February 23, 2020

Not a great day.  Well, overall vitals are OK, but she's just not in a good place in general.  We seem to be losing the battle with her...

February 22, 2020

Short Julia update.  She's had an OK day.  The left chest tube drain was removed late last night with no issue.  She threw up a few...

February 21, 2020

Early update (everything's fine... Reed just wants dinner... which pretty much never happens).  An OK day for vitals.  Heart rate...

February 20, 2020

Another decent day =) Vitals all OK: heart rate 150s, BP 70s/40s.  No fevers. I guess the drain to her left pleural effusion (sac of...

February 19, 2020

Today's been pretty good.  Her vitals have been decent, with BP a touch on the low side: heart rate 150s, ET low 40s, BP 70s/40s.  An...

February 18, 2020

Other than the abdominal drain kind of acting up, it's been a pretty good day for Julia. Vitals have been fine: heart rate 150s, ET low...

February 17, 2020

Final day for this round of chemo. She's had another pretty tired day, as expected.  Vitals have been pretty good, heart rate 140s/150s,...

February 16, 2020

Day 4 of 5 for chemo. Short Julia update, because she's mostly just slept the day away.  We didn't really notice the exhaustion from...

February 15, 2020

Day 3 of 5 for chemo. She's had a fine day, but she's been SUPER tired.  No one is concerned, and it could definitely just be chemo...

February 14, 2020

Round 2 of chemo attempt #3, day 2 of 5. Things have been pretty OK today.  She had a fever this morning 102.9 (39.4), but Tylenol and...

February 13, 2020

Early update.  Everything's fine - I'm just heading to Aunt Charlene's to see my little guy for Valentine's Day.  I'll be with Julia all...

February 12, 2020

No emergencies.  Vitals are OK: heart rate 160s, ET low 40s, BP currently 88/53.  Heart rate is sitting a bit higher in general.  Tylenol...

February 11, 2020

Another emergency-free day. Her heart rate has been steady in the 150s all day, 160s if she's being bothered.  It's a touch higher than...

February 10, 2020

Better day than yesterday. No new emergencies. Her heart rate came down to the 140s last night, which is totally fine. Today it slowly...

February 9, 2020

Not a great day for Julia. She was just fine all night, but in late morning she had some major changes. Her heart rate went up to the...

February 8, 2020

Julia's doing pretty OK today. Vitals remain solid with the increased drain (heart rate 130s/140s, BP 100s/60s). No fever. Dermatology...

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